NCT06885918Recruiting
ALS Research Collaborative
ALS Translational Research Program
Source: ClinicalTrials.gov · Last updated 20 Mar 2025 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 2000 (estimated)
- First submitted
- 27 Feb 2025
- Start date
- 12 Sept 2014
- Primary completion date
- 31 Jan 2035
- Lead sponsor
- ALS Therapy Development Institute
- NCT number
- NCT06885918
What you commit to
- Study type: Observational
- Planned participants: 2000
- From 12 Sept 2014 to the primary completion date, 31 Jan 2035
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other illness
- Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.
Who the study is looking for
- 18 years of age or older
- Can communicate in written English
- Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation
Age in the registry: 18 years to - · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| ALS Therapy Development Institute Coordinator of this site? Confirm its status | Watertown | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.