Essen Amyloidosis Registry Collecting Data on Systemic Amyloidosis Patients
Collects long-term health data on adults with suspected or confirmed systemic amyloidosis.
Plain-language title generated from the registry record
Registry title: Essen Amyloidosis Registry
Key facts
- Where
- Essen, GermanySee the site
Where in Germany
- University Hospital EssenEssen, GermanyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University Hospital, Essen
- Trial code
- NCT06887283
- Record updated
- 6 November 2026
- Original description
The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.Read full original descriptionShow less
Essen Amyloidosis Registry
The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.
Inclusion: Suspected or confirmed amyloidosis (any); Written informed consent to participate in the study; Age 18 years and above.
Exclusion: Age < 18 years; Lack of written informed consent.