Essen Amyloidosis Registry Collecting Data on Systemic Amyloidosis Patients
Collects long-term health data on adults with suspected or confirmed systemic amyloidosis.
Key facts
- Who runs it
- University Hospital, Essen
- Where
- Essen, GermanySee the site
- Trial code
- Registry title
- Essen Amyloidosis Registry
- Status
- Recruiting
- People taking part
- 400 people, planned
- Started
- 8 May 2024
- Expected to end
- 1 Jul 2029
- Type of study
- Observational
- Record updated
- 6 November 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The registry is looking for adults with suspected or confirmed amyloidosis who give written consent. It follows them over time and collects health data.
- Age
- 18 years and above
- Sex
- All sexes can join.
- Disease stage
- Any type of suspected or confirmed amyloidosis.
Main reasons for not taking part
- Younger than 18 years
- No written informed consent
The registry criteria, word for word
Show all 5 criteriaShow less
Who can take part
- Suspected or confirmed amyloidosis (any)
- Written informed consent to participate in the study
- Age 18 years and above
Who cannot take part
- Age < 18 years
- Lack of written informed consent
Where in Germany
- University Hospital EssenEssen, GermanyContact: Lars Michel, MDTaking people
About the trial
What the trial wants to find out
The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Essen Amyloidosis Registry
- Plain-language title
- Essen Amyloidosis Registry Collecting Data on Systemic Amyloidosis PatientsGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 6 November 2026