Follows children in the Netherlands after cardiac arrest, both in and outside hospital
Studies long-term survival and recovery in children under 18 after cardiac arrest.
Plain-language title generated from the registry record
Registry title: Dutch Registry of Pediatric Cardiac Arrest
Key facts
- Where
- Amsterdam, Groningen, Leiden, Maastricht, Nijmegen, Rotterdam, and Utrecht, NetherlandsSee the 7 sites
Where in Netherlands
- Amsterdam UMCAmsterdam, NetherlandsTaking people
- UMCGGroningen, NetherlandsTaking people
- LUMCLeiden, NetherlandsTaking people
- MUMC+Maastricht, NetherlandsTaking people
- Radboud UMCNijmegen, NetherlandsTaking people
- Erasmus MCRotterdam, NetherlandsTaking people
- UMCUUtrecht, NetherlandsTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Matthijs de Hoog
- Trial code
- NCT06938009
- Record updated
- 22 April 2025
- Original description
The goal of this observational study is to understand the long-term outcomes of children in the Netherlands who experience cardiac arrest, either in or outside of the hospital. The main questions it aims to answer are:Read full original descriptionShow less
Pediatric Resuscitation Neuroprognostication and Outcomes Registry
The goal of this observational study is to understand the long-term outcomes of children in the Netherlands who experience cardiac arrest, either in or outside of the hospital. The main questions it aims to answer are:
What are the survival rates and neurological outcomes in children after cardiac arrest?
What types of emergency and post-resuscitation care are provided, and how do they impact long-term recovery?
How do children and their families function over time after the event?
Researchers will analyze data from routine medical records and follow patients through standard outpatient visits. No extra procedures will be required beyond normal care. For those who survive to hospital discharge, additional follow-up data will be collected with consent.
Participants will:
Be children under 18 years old who have had a cardiac arrest and were treated in one of the seven participating academic hospitals
Have their routine medical care data collected anonymously
Be invited (if surviving) for follow-up visits at 3, 12, and 24 months post-arrest and at specific ages (5, 8, 12, and 17 years) to assess physical and psychological recovery
Inclusion: Pediatric patients under the age of 18; Experienced in-hospital or out-of-hospital cardiac arrest in the Netherlands; Attended by emergency medical services or admitted to one of the seven participating Dutch academic pediatric hospitals; Cardiac arrest defined as absence of palpable pulse or need for chest compressions lasting ≥1 minute; Arrest managed under European Resuscitation Council guidelines (BLS/APLS).
Exclusion: Cardiac arrest occurring in a neonatal intensive care unit (NICU) setting; Cardiac arrest occurring in neonates younger than 24 hours of age.