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Studying What Limits Physical Activity in Adults With Hemophilia-Related Joint Damage

Surveys adults with hemophilia and joint damage to find what predicts their physical activity.

Plain-language title generated from the registry record
Registry title: Predictors of Physical Activity in Adult Patients With Hemophilic Arthropathy

Key facts

Where
Murcia, SpainSee the site

Could this be for you?

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 18 and 65 years old?

Source: NCT06960499, who can take part

Where in Spain

  • Universidad Católica San Antonio de MurciaMurcia, SpainNo longer taking part

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
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Trial details

Who runs it
Universidad Católica San Antonio de Murcia
Trial code
NCT06960499
Record updated
7 May 2025
Original description
Introduction. The development of hemophilic arthropathy causes degenerative joint damage that leads to functional impairment, limiting physical activity and causing disability in patients with hemophilia.Read full original descriptionShow less

Predictors of Physical Activity in Adult Patients With Hemophilic Arthropathy. A Multicenter Cross-sectional Cohort Study

Introduction. The development of hemophilic arthropathy causes degenerative joint damage that leads to functional impairment, limiting physical activity and causing disability in patients with hemophilia.

Objectives. i) To assess the level of physical activity in patients with hemophilia; ii) To identify the best predictive model for physical activity in adult patients with hemophilic arthropathy.

Material and method. Multicenter cross-sectional cohort study. Eighty-eight patients will be recruited. The dependent variable will be physical activity (International Physical Activity Questionnaire). Secondary variables will be kinesiophobia (Tampa Kinesiophobia Scale), functionality (Functional Independence Scale in Hemophilia), pain intensity, and clinical, anthropometric, and sociodemographic variables.

Inclusion: Patients with hemophilia A or B; Over the age of majority; With a medical diagnosis of severe phenotype of the disease; With a medical diagnosis of hemophilic arthropathy in the lower limbs; Under on-demand or prophylactic drug treatment.

Exclusion: Patients over the age of 60; Patients who require technical aids for walking; Patients who are dependent for activities of daily living; Patients with cognitive impairments that prevent them from understanding the questionnaires.

ClinicalTrials.gov NCT06960499

Under construction, not live – Predictors of Physical Activity in Adult Patients With Hemophilic Arthropathy (NCT06960499) – Frontlight Research