Mobile Tool to Help Patients With Bladder Cancer Track Quality of Life
Asks adults with urothelial carcinoma which contents they find useful in a web app.
Plain-language title generated from the registry record
Registry title: A Patient-Directed Mobile Tool to Streamline the QoL Assessment and Monitoring in Urothelial Carcinoma
Key facts
- Where
- Milan, ItalySee the site
Where in Italy
- IRCCS San RaffaeleMilan, ItalyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- IRCCS San Raffaele
- Trial code
- NCT06982794
- Record updated
- 21 May 2025
- Original description
The goal of this observational study is to select contents and tools for the future development of a web app aiming to support patients' navigation for empowering decision-making through a higher awareness of urothelial carcinoma and its treatments, improving also educational aspects.Read full original descriptionShow less
'UROLIFE': a Patient-Directed Mobile Tool to Streamline the QoL Assessment and Monitoring in Urothelial Carcinoma
The goal of this observational study is to select contents and tools for the future development of a web app aiming to support patients' navigation for empowering decision-making through a higher awareness of urothelial carcinoma and its treatments, improving also educational aspects.
The main question it aims to answer is:
What are the contents that patients diagnosed with urothelial carcinoma find useful to include in a web app to streamline their quality of life assessment and monitoring?
Participants candidate for systemic treatments, or already under treatment, will answer questionnaires about the tools to include in a web app designed for urothelial carcinoma.
Inclusion: histological diagnosis of urothelial carcinoma; ≥ 18 years old,; candidate for systemic treatment with chemotherapy, immune-checkpoint inhibitors, antibody-drug conjugates, or target therapy (patients can be enrolled also if the treatment has started),; possession of a mobile device (e.g., smartphone or personal computer) with the physical and psychological ability to use mobile devices,; understanding and speaking the Italian language,; ability to sign an informed consent.
Exclusion: not possession of a mobile device,; unwillingness to give informed consent.