Tests a 12-week exercise program in people with hereditary ATTR amyloidosis
Tests a 12-week exercise program in adults with hereditary ATTR amyloidosis.
Plain-language title generated from the registry record
Registry title: Exercise in Hereditary ATTR (ATTRv) Amyloidosis
Key facts
- Where
- Maia, PortugalSee the site
Where in Portugal
- University of MaiaMaia, PortugalTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Maia
- Trial code
- NCT07033715
- Record updated
- 24 June 2025
- Original description
This study aims to explore the effects of a 12-week exercise intervention on the physical and mental health of people living with Hereditary ATTR (ATTRv) Amyloidosis, a rare genetic disease caused by mutations in the transthyretin gene, leading to the deposition of amyloid fibrils in nerves and organs.Read full original descriptionShow less
Effects of a 12-week Exercise Intervention on Physical and Mental Health in Hereditary ATTR (ATTRv) Amyloidosis
This study aims to explore the effects of a 12-week exercise intervention on the physical and mental health of people living with Hereditary ATTR (ATTRv) Amyloidosis, a rare genetic disease caused by mutations in the transthyretin gene, leading to the deposition of amyloid fibrils in nerves and organs.
Inclusion: ATTRv Amyloidosis patients living in Portugal; Disease stage 1 or 2; No medical contraindication for exercising; Ability to provide informed consent.
Exclusion: Having undergone a liver transplant in the past 6 months.