Questionnaire on family bone history for adults with osteoporosis
Tests a self-completed questionnaire on family bone history in adults with osteoporosis.
Plain-language title generated from the registry record
Registry title: Self-questionnaire in Osteoporosis
Key facts
- Where
- Québec, CanadaSee the site
Where in Canada
- CHU de Quebec-Universite LavalQuébec, CanadaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- CHU de Quebec-Universite Laval
- Trial code
- NCT07067827
- Record updated
- 8 May 2026
- Original description
Osteoporosis is a multifactorial disease in which genetic predispositions play a key role in its development. A better understanding of family history and clinical manifestations among first- and second-degree relatives can help improve early detection and personalized care for at-risk patients. To this end, we will test a self-administered questionnaire previously developed by our research team. This questionnaire includes the main manifestations associated with rare genetic bone diseases such as osteogenesis imperfecta, hypophosphatasia, and osteopetrosis.Read full original descriptionShow less
Clinical Validation of a Self-questionnaire in Adults With Osteoporosis
Osteoporosis is a multifactorial disease in which genetic predispositions play a key role in its development. A better understanding of family history and clinical manifestations among first- and second-degree relatives can help improve early detection and personalized care for at-risk patients. To this end, we will test a self-administered questionnaire previously developed by our research team. This questionnaire includes the main manifestations associated with rare genetic bone diseases such as osteogenesis imperfecta, hypophosphatasia, and osteopetrosis.
Inclusion: Adult over 18; Followed by the rheumatology or endocrinology clinics at the CHUL (CHU de Quebec-Universite Laval); Suffer from osteoporosis; Have internet access.
Exclusion: Unfit, unable to consent, unable to answer a questionnaire, unknown family history (e.g. adopted person).