Online platform helping people with motor neurone disease join research
Lets people with motor neurone disease in the UK join research remotely.
Plain-language title generated from the registry record
Registry title: Telehealth in MND-Research (TIM-R): A Research Database for MND
Key facts
- Where
- Sheffield, United KingdomSee the site
Where in United Kingdom
- University of SheffieldSheffield, United KingdomTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Sheffield
- Trial code
- NCT07132879
- Record updated
- 20 August 2025
- Original description
The aim of this study is to implement the Telehealth in MND system as a research database allowing people with MND to take part in research and provide data remotely (TiM-Research).Read full original descriptionShow less
Telehealth in MND-Research (TIM-R): A Research Database for MND
The aim of this study is to implement the Telehealth in MND system as a research database allowing people with MND to take part in research and provide data remotely (TiM-Research).
TiM-Research is an online platform that helps people with MND in the UK take part in research. It brings MND research studies together in one place, making it quick and easy to learn about opportunities to get involved.
What's involved? Participants will receive information about a wide range of research studies that they can sign up for. This could include filling out questionnaires that help researchers understand how MND progresses, providing biosamples (e.g. saliva), or taking part in interviews and focus groups about their experiences. Participants can choose which studies they want to take part in. Participants will also receive updates on research results from the UK MND Research Institute.
Who can take part? People who live with MND and who are based in the UK can sign up for TiM-Research. To join, participants need a computer, phone, or tablet with an internet connection. A family member or carer can help. Participants' information will be kept secure and confidential.
How do participants sign up? Visit the website to find out more or sign up. www.bit.ly/ukmndri-Tim-R.
Inclusion: People living with MND; Living in the UK.