Under construction – not a live service
Sign in
Taking people in Puerto RicoNo phase

Study of everyday disease burden in alopecia areata, vitiligo and hidradenitis suppurativa

Looks at how alopecia areata, vitiligo or hidradenitis suppurativa affect teenagers and adults.

Key facts

Who runs it
AbbVie
Where
Caguas and San Juan, Puerto RicoSee the 3 sitesAlso in 17 other countries, 113 sites
Trial code
Registry title
A Real World Study to Globally Assess Disease Burden in Adolescent and Adult Participants With Alopecia Areata, Vitiligo, or Hidradenitis Suppurativa
Status
Recruiting
People taking part
2,795 people, planned
Started
2 Sept 2025
Expected to end
Aug 2027
Type of study
Observational, 3 groups
Record updated
13 February 2026

Who can take part

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for teens and adults with vitiligo, alopecia areata or hidradenitis suppurativa. It is one visit to collect data and questionnaires on how the disease affects daily life.

Age
12 Years and older
Sex
All sexes
Disease stage
A doctor-confirmed diagnosis of non-segmental vitiligo (NSV), moderate to severe alopecia areata (AA, patchy hair loss), or moderate to severe hidradenitis suppurativa (HS, painful skin lumps).

Main reasons for not taking part

  • Taking part in an interventional clinical trial at the time of the study visit. Other observational studies or registries are allowed.
  • Unable or unwilling to follow study requirements or fill in the questionnaires.
  • Unable to understand the study questionnaires. Teens may have caregiver help.

The registry criteria, word for word

Show all 4 criteriaShow less

Who can take part

  • Participants with Physician-confirmed diagnosis of non-segmental vitiligo (NSV), moderate to severe Alopecia Areata (AA), or moderate to severe hidradenitis suppurativa (HS)
  • Participants Ability to understand study questionnaires, with caregiver support as required for adolescents

Who cannot take part

  • Participating in interventional clinical trial(s) at time of study visit (participation in another non-interventional study or registry does not exclude a participant from this study)
  • Unable or unwilling to comply with study requirements and PRO collection

Where in Puerto Rico

Also in 17 other countries, 113 sites

  • Dermatologia Borinquen LLC /ID# 276802Caguas, Puerto RicoContact: Beth RycroftTaking people
  • Dr. Samuel Sanchez PSC /ID# 276386Caguas, Puerto RicoContact: Beth RycroftTaking people
  • Clinical Research Puerto Rico /ID# 276801San Juan, Puerto RicoContact: Beth RycroftTaking people

About the trial

What the trial wants to find out

This study is to assess the burden of disease in adolescent and adult participants with moderate or severe alopecia areata (AA), non-segmental vitiligo (NSV), or moderate to severe hidradenitis suppurativa (HS) in a large global real-world participant population.

The 3 groups in the trial

  • Participants with Vitiligo

    Participants with vitiligo will undergo a single-visit data collection per routine clinical practice

  • Participants with Alopecia Areata

    Participants with alopecia areata will undergo a single-visit data collection per routine clinical practice

  • Participants with Hidradenitis Suppurativa

    Participants with hidradenitis suppurativa will undergo a single-visit data collection per routine clinical practice

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Multi-Country, Cross-sectional Study to Characterize Real World Burden of Disease in Adolescent and Adult Patients With Alopecia Areata, Vitiligo or Hidradenitis Suppurativa (MEASURE AAVitHS)
Plain-language title
Study of everyday disease burden in alopecia areata, vitiligo and hidradenitis suppurativaGenerated from the registry record. The registry title is the official one.
AI summary
From the trial's eligibility criteria. Read by machine on 14 November 2026.
Record updated
13 February 2026