Testing Ways to Include Autistic People in Discussions About Behavioral Therapy Research
Compares two community discussion methods bringing autistic people and behavioral therapy providers together.
Plain-language title generated from the registry record
Registry title: Centering Autistic Perspectives in Behavioral Intervention Discussions
Key facts
- Where
- Philadelphia, United StatesSee the site
Where in United States
- AJ Drexel Autism InstitutePhiladelphia, United StatesNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Drexel University
- Trial code
- NCT07165522
- Record updated
- 10 September 2025
- Original description
The Centering Autistic Perspectives for Behavioral Interventions Discussions (CAPBID) PCORI Science of Engagement Award will examine different community engagement approaches for bringing together autistic people, Applied Behavioral Analysis (ABA) providers, and other members of the autism community to advance a shared equitable dialogue around research priorities for ABA-related research. One of these approaches will be based on existing transformative and restorative justice methods and frameworks. This project also utilizes a community-driven participatory research approach that will center autistic leadership in all aspects of the project.Read full original descriptionShow less
Adapting and Testing a Novel Method of Engagement in Research: Centering Autistic Perspectives in Behavioral Intervention Discussions
The Centering Autistic Perspectives for Behavioral Interventions Discussions (CAPBID) PCORI Science of Engagement Award will examine different community engagement approaches for bringing together autistic people, Applied Behavioral Analysis (ABA) providers, and other members of the autism community to advance a shared equitable dialogue around research priorities for ABA-related research. One of these approaches will be based on existing transformative and restorative justice methods and frameworks. This project also utilizes a community-driven participatory research approach that will center autistic leadership in all aspects of the project.
The investigators hope that this research will pave the way for creating spaces where autistic people are heard in their experiences and can collaborate effectively with open-minded ABA providers about how to advance the next generation of care and research in the field. More broadly, the investigators aim to create engagement approaches that may be used to have conversations around critical and difficult issues faced by the autistic and autism communities, as well as other marginalized communities.
Inclusion: Adults over the age of 18; Individuals who have had experience with Applied Behavior Analysis (ABA) at any time in their lives who is:; An Autistic individual who experienced Applied Behavior Analysis or; A practitioner who currently or previously was involved in the delivery of Applied Behavior Analysis; Able to communicate fluently in English; Individuals who do not report the endpoint values on the AAPS:; ABA should never be used for autistic people; ABA is the only evidence-based intervention for autism.
Exclusion: Under the age of 18,; Unable to communicate in English.