Stores body samples and health data from people with amyloidosis
Collects and stores body samples and clinical data from adults with amyloidosis.
Plain-language title generated from the registry record
Registry title: BE.Amycon Biobank & Data Registry UZ Leuven
Key facts
- Where
- Leuven, BelgiumSee the 2 sites
Where in Belgium
- UZ Leuven Gasthuisberg - cardiologyLeuven, BelgiumTaking people
- UZ Leuven Gasthuisberg - hematologyLeuven, BelgiumTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Universitaire Ziekenhuizen KU Leuven
- Trial code
- NCT07172243
- Record updated
- 25 September 2026
- Original description
The goal of this study is to collect and store human body material (HBM) of patients with amyloidosis in a biobank "BE.Amycon biobank" for future research and to collect clinical data of patients with amyloidosis in a database "BE.Amycon data registry".Read full original descriptionShow less
BE.Amycon Biobank & Data Registry UZ Leuven: Human Body Material (HBM) Collection and Data Collection of Patients With Amyloidosis
The goal of this study is to collect and store human body material (HBM) of patients with amyloidosis in a biobank "BE.Amycon biobank" for future research and to collect clinical data of patients with amyloidosis in a database "BE.Amycon data registry".
Inclusion: Provide consent and sign informed consent form; Age 18 years or older; Diagnosis of amyloidosis (suspected or confirmed, any subtypes); For the prospective sample collection only: newly diagnosed (any subtype) or at relapse (AL amyloidosis).
Exclusion: Not willing to sign informed consent; Not able to sign informed consent.