Registry Following People With ALS Across Thailand
Collects health, genetic and outcome data from people with ALS in Thailand.
Plain-language title generated from the registry record
Registry title: Amyotrophic Lateral Sclerosis Registry in Thailand
Key facts
- Where
- Pathum Wan, ThailandSee the site
Where in Thailand
- King Chulalongkorn Memorial hospital, The Thai Red Cross SocietyPathum Wan, ThailandTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Chulalongkorn University
- Trial code
- NCT07175935
- Record updated
- 16 September 2025
- Original description
This is a prospective, observational, multicenter registry designed to collect comprehensive clinical, genetic, and outcome data from patients diagnosed with amyotrophic lateral sclerosis (ALS) across Thailand. The registry will establish a national dataset to describe epidemiology, clinical presentation, progression, and treatment outcomes, and will serve as a platform for future clinical and translational research.Read full original descriptionShow less
A Prospective, Multicenter Registry Study of Amyotrophic Lateral Sclerosis in Thailand
This is a prospective, observational, multicenter registry designed to collect comprehensive clinical, genetic, and outcome data from patients diagnosed with amyotrophic lateral sclerosis (ALS) across Thailand. The registry will establish a national dataset to describe epidemiology, clinical presentation, progression, and treatment outcomes, and will serve as a platform for future clinical and translational research.
Inclusion: Diagnosis of ALS according to El Escorial or Gold Coast criteria; Age ≥ 18 years; Ability and willingness to provide informed consent.
Exclusion: Patients unwilling to provide informed consent; Patients with alternative diagnoses mimicking ALS.