Reviews medical records of people with neuroendocrine carcinomas in Latin America
Studies how neuroendocrine carcinomas are treated and how patients do over time.
Plain-language title generated from the registry record
Registry title: Neuroendocrine Carcinomas: Patient Journey And Treatment Outcomes In Latin America
Key facts
- Where
- Belo Horizonte, Cachoeiro de Itapemirim, Campo Grande, Curitiba, Lages, Londrina, Natal, Porto Alegre, Rio de Janeiro, and São Paulo, BrazilSee the 13 sites
Where in Brazil
- Oncocentro de Minas Gerais (Oncoclínicas)Belo Horizonte, BrazilNo longer taking part
- Hospital Evangélico de Cachoeiro de Itapemirim - Centro de Pesquisas Clínicas em Oncologia (CPCO)Cachoeiro de Itapemirim, BrazilNo longer taking part
- Clínica Prognóstica - Centro de Pesquisa Clínica OnconeoCampo Grande, BrazilNo longer taking part
- IOP Pesquisa - Instituto de Oncologia do ParanáCuritiba, BrazilNo longer taking part
- ANIMI - Unidade de Tratamento OncológicoLages, BrazilNo longer taking part
- HCL - Hospital do Câncer de LondrinaLondrina, BrazilNo longer taking part
- HUOL - Hospital Universitário Onofre Lopes da UFRNNatal, BrazilNo longer taking part
- Liga Norte Riograndense Contra o CancerNatal, BrazilNo longer taking part
- Futtura Oncologia - Hub de Pesquisa ClínicaPorto Alegre, BrazilNo longer taking part
- HMV - Hospital Moinhos de VentoPorto Alegre, BrazilNo longer taking part
- INCA - Instituto Nacional de CâncerRio de Janeiro, BrazilNo longer taking part
- A.C. Camargo Cancer CenterSão Paulo, BrazilNo longer taking part
- HIAE - Hospital Israelita Albert EinsteinSão Paulo, BrazilNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Latin American Cooperative Oncology Group
- Trial code
- NCT07192991
- Record updated
- 8 September 2026
- Original description
This observational, retrospective study aims to understand the treatment patterns and outcomes of patients with pulmonary and extra-pulmonary neuroendocrine carcinomas (NEC) in Latin America (Brazil, Mexico, Argentina, and Peru). The research will collect data from medical records to analyze factors like patient demographics, diagnosis methods, tumor characteristics, treatment approaches, and disease progression. The study is non-interventional, meaning patient care will follow standard clinical practice, with data gathered via an electronic system.Read full original descriptionShow less
Neuroendocrine Carcinomas: Patient Journey And Treatment Outcomes In Latin America
This observational, retrospective study aims to understand the treatment patterns and outcomes of patients with pulmonary and extra-pulmonary neuroendocrine carcinomas (NEC) in Latin America (Brazil, Mexico, Argentina, and Peru). The research will collect data from medical records to analyze factors like patient demographics, diagnosis methods, tumor characteristics, treatment approaches, and disease progression. The study is non-interventional, meaning patient care will follow standard clinical practice, with data gathered via an electronic system.
Inclusion: ≥18 years old; Diagnosed between August 2014 and August 2024 with one of the following:; Extrapulmonary Neuroendocrine Carcinoma (EP-NEC); Large-cell neuroendocrine carcinoma (LCNEC) or mixed; Small Cell Lung Cancer (SCLC) or mixed; Adequate and accessible medical records for data collection; Tumor block collected from 2014 onwards.
Exclusion: Patients with active, concurrent malignancies at the time of NEC diagnosis, except for non-invasive cancers like basal cell carcinoma or squamous cell carcinoma of the skin, or in situ cervical cancer; Patients or their legal representatives unwilling or unable to provide informed consent (if needed per ethics committee).