Supporting family caregivers of people with multiple myeloma through an education program
Tests an education and needs-assessment program for adult caregivers of people with multiple myeloma.
Plain-language title generated from the registry record
Registry title: Quality of Life Assessment of Caregivers of Patients With Multiple Myeloma
Key facts
- Where
- Paris, FranceSee the site
Where in France
- Hématologie clinique - Pitié-Salpêtrière Hospital (APHP)Paris, FranceNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Assistance Publique - Hôpitaux de Paris
- Trial code
- NCT07276230
- Record updated
- 29 December 2025
- Original description
The diagnosis and treatment of multiple myeloma affect not only the patient but also their family and caregivers. Advances in therapy have transformed the follow-up of patients treated for multiple myeloma. The involvement of informal caregivers has become increasingly essential to ensure adequate home-based care, as most treatments are now delivered on an outpatient basis. Literature reviews suggest that caregivers of cancer patients often face unmet supportive care needs, which in turn negatively impact their quality of life.Read full original descriptionShow less
Quality of Life Assessment of Caregivers of Patients With Multiple Myeloma Participating in a Therapeutic Education Program and Receiving a Supportive Care Needs Evaluation
The diagnosis and treatment of multiple myeloma affect not only the patient but also their family and caregivers. Advances in therapy have transformed the follow-up of patients treated for multiple myeloma. The involvement of informal caregivers has become increasingly essential to ensure adequate home-based care, as most treatments are now delivered on an outpatient basis. Literature reviews suggest that caregivers of cancer patients often face unmet supportive care needs, which in turn negatively impact their quality of life.
Inclusion: Caregiver :; Designated by a patient followed for multiple myeloma during first-line treatment; Providing weekly assistance to the patient (e.g., shopping, housekeeping, management of daily living activities, healthcare or hygiene support, etc.); Aged 18 years or older; Fluent in French; Affiliated with or benefiting from a social security system (excluding state medical aid - AME); Able to provide free, written, and informed consent.
Exclusion: Currently being treated for an acute medical condition; Caregiver :; Not designated by the patient as the primary caregiver; Refusal of the caregiver to participate in the study; Under legal protection (guardianship or curatorship).