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Taking people in GermanyNo phase

Long-term Follow-up of Adults With Crohn Disease and Ulcerative Colitis in Germany

Collects routine-care information on adults with inflammatory bowel disease across Germany.

Key facts

Who runs it
ImmunoRegister gUG
Where
Hamburg, GermanySee the site
Trial code
Registry title
CEDUR - German IBD Registry
Status
Recruiting
People taking part
10,000 people, planned
Started
3 May 2018
Expected to end
May 2036
Type of study
Observational
Record updated
6 January 2026

Who can take part

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for adults with inflammatory bowel disease: Crohn disease, ulcerative colitis or indeterminate colitis. It follows them over time in routine care in Germany.

Age
18 years or older
Sex
All sexes can join
Disease stage
Crohn disease, ulcerative colitis or indeterminate colitis. No stage or severity is named.

Main reasons for not taking part

  • Other bowel or digestive disorders than the three named above

The registry criteria, word for word

Show all 2 criteriaShow less

Who can take part

  • Crohn Disease Ulcerative Colitis Indterminate Colitis

Who cannot take part

  • Other gastrointestinal disorders than above

Where in Germany

  • ImmunoRegister gUGHamburg, GermanyContact: Stefanie Howaldt, MDTaking people

About the trial

What the trial wants to find out

The CEDUR registry systematically collects real-world data on inflammatory bowel disease (IBD) patients in Germany. The registry aims to assess quality of care, disease activity, treatment effectiveness, safety, and pharmacoeconomic aspects under routine clinical conditions.

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Long-term Observation of IBD Patients, a Nationwide German IBD Registry "CEDUR"
Plain-language title
Long-term Follow-up of Adults With Crohn Disease and Ulcerative Colitis in GermanyGenerated from the registry record. The registry title is the official one.
AI summary
From the trial's eligibility criteria. Read by machine on 13 November 2026.
Record updated
6 January 2026