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Lifestyle, stress and heart risk factors in people with inherited aortic disease

Surveys lifestyle, mood and heart risks in people with genetic thoracic aortic aneurysm.

Key facts

Who runs it
IRCCS Policlinico S. Donato
Where
Italy1 site in 1 countryChoose a country to see its sites
Trial code
Registry title
Genetic Aortic Diseases and Cardiovascular Complications. An Observational Survey of Risk Factors.
Status
Recruiting
People taking part
208 people, planned
Started
6 May 2025
Expected to end
May 2027
Type of study
Observational
Treatments tested
  • Journey to diagnosis
  • Quality of life, functional health and well-being
  • Awareness and self-esteem, acceptance of the condition
  • psychological and physical well-being
Record updated
5 February 2026

Who can take part

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for people with a genetic disease of the aorta, such as a thoracic aortic aneurysm (a widening of the main artery in the chest). It surveys lifestyle, stress and other risk factors.

Age
14 Years to 60 Years
Sex
All sexes can join.
Disease stage
Genetic aortic disease (thoracic aortic aneurysm).

Main reasons for not taking part

  • People who cannot speak, read and write in Italian cannot join.
  • People who do not sign the consent form cannot join.

The registry criteria, word for word

Show all 3 criteriaShow less

Who can take part

  • signed onformed consent
  • Ability to speak, read and write in Italian

Who cannot take part

  • -

Check if you might fit

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 14 and 60 years old?

This trial has no sites in United States.

It has sites in one country. Choose a country to see its sites.

About the trial

What the trial wants to find out

The aim of this observational study is to define the behavioural and cardiovascular risk factor profiles of patients with genetic aortopathies. The main questions it aims to answer are:

Read full original descriptionShow less

* How do the interconnections between lifestyle, stress, psychological condition, perception of illness, and state of health influence each other in this population? * Beyond traditional risk factors, additional emerging factors should be considered, including pregnancy-related complications, sedentary lifestyle, early menopause and depression. The interplay between eating disorders, lifestyle factors and autoimmune or inflammatory bowel diseases remains poorly understood.

The group in the trial

  • TAA

    subjects with TAA aged between 14 and 60 years

    Treatment: Journey to diagnosis, Quality of life, functional health and well-being, Awareness and self-esteem, acceptance of the condition, and psychological and physical well-being

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Genetic Aortic Diseases and Cardiovascular Complications. An Observational Survey of Risk Factors.
Plain-language title
Lifestyle, stress and heart risk factors in people with inherited aortic diseaseGenerated from the registry record. The registry title is the official one.
AI summary
From the trial's eligibility criteria. Read by machine on 14 November 2026.
Fit questions
Built from NCT07391293, who can take part
Record updated
5 February 2026