Studying how care is shared between teams for people with motor neurone disease
Looks at how care is coordinated for adults with motor neurone disease.
Key facts
- Who runs it
- University of Sheffield
- Where
- Sheffield, United KingdomSee the site
- Trial code
- Registry title
- MND Together: Phase 1
- Status
- Not yet recruiting
- People taking part
- 287 people, planned
- Started
- Feb 2026
- Expected to end
- Feb 2027
- Type of study
- Observational
- Treatments tested
- Not applicable- observational study
- Record updated
- 6 February 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for people with motor neurone disease (MND), their carers and former carers, and health and social care staff, managers and commissioners. It studies how MND care is coordinated.
- Age
- 18 years and older
- Sex
- All sexes can join
Main reasons for not taking part
- Cannot take part in a focus group, interview or email interview (workstream 1)
- Cannot take part in observations and interviews (workstream 2)
The registry criteria, word for word
Show all 7 criteriaShow less
Who can take part
- Person with MND, carers, former carers, Health and Social Care Professionals, managers and commissioners
- Ability to engage in focus group or interview or email interview
- Person with MND, carers, former carers, Health and Social Care Professionals, managers and commissioners
- Ability to engage in an observations and interviews
Who cannot take part
- no exclusion criteria; WS2
- no exclusion criteria
Other criteria
- WS1
Where in United Kingdom
- School of Medicine and Populational HealthSheffield, United KingdomContact: Liam Knox, PhDNot yet recruiting
About the trial
What the trial wants to find out
This project consists of two workstreams, both of which will be mixed-methods and aim to develop a national UK picture of current care coordination for people with MND, including observations of barriers and facilitators. The studies will explore how care is transferred and communicated across MND specialist services to non-specialist community health settings.
Read full original descriptionShow less
In workstream 1, the researchers will conduct focus groups with people with MND, Carers, former Carers, Health and Social Care Professionals and managers and commissioners. These focus groups, alongside the analysis of routine data, will create a national picture of MND care and begin a behavioural diagnosis of the barriers and facilitators. In workstream 2, a multi-site ethnography study will be conducted, including observations, interviews, routine data, care plan and document review. This Workstream will observe how care is coordinated between specialist and non-specialist services and continue to explore barriers and facilitators that can not be identified through interviews.
Treatments tested
- Not applicable- observational study
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- MND Together: Improving Communication and Coordination of Motor Neuron Disease Care
- Plain-language title
- Studying how care is shared between teams for people with motor neurone diseaseGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 6 February 2026