Registry of people with generalized pustular psoriasis in Costa Rica
Records the health, treatment and course of people with generalized pustular psoriasis.
Plain-language title generated from the registry record
Registry title: Generalized Pustular Psoriasis Registry in Costa Rica
Key facts
- Where
- San José, Costa RicaSee the site
Where in Costa Rica
- Caja Costarricense del Seguro SocialSan José, Costa RicaNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Caja Costarricense de Seguro Social
- Trial code
- NCT07448428
- Record updated
- 9 March 2026
- Original description
The goal of this observational registry study is to characterize the clinical, epidemiological, and therapeutic features of patients with generalized pustular psoriasis (GPP) in Costa Rica through a standardized national registry. The main question it aims to answer is:Read full original descriptionShow less
National Registry of Patients With Generalized Pustular Psoriasis Treated Within the Costa Rican Social Security System
The goal of this observational registry study is to characterize the clinical, epidemiological, and therapeutic features of patients with generalized pustular psoriasis (GPP) in Costa Rica through a standardized national registry. The main question it aims to answer is:
What are the clinical, epidemiological, and therapeutic characteristics of patients with generalized pustular psoriasis registered in the country, and how do these relate to disease severity and evolution?
Patients with GPP receiving routine dermatologic care in participating centers will have their demographic, clinical, severity, comorbidity, and treatment data recorded using a standardized case report form. Clinical assessments (e.g., GPPASI, PASI/BSA, DLQI), laboratory results, triggers, complications, and therapies will be documented and updated during periodic follow-up visits as part of usual care.
Inclusion: Confirmed diagnosis of generalized pustular psoriasis (GPP) established by a board-certified dermatologist based on compatible clinical and/or histopathologic criteria; Registered diagnosis of GPP in the institutional electronic health record system (EDUS code L401) during the study period; Patients of any age and sex receiving care within participating centers of the Costa Rican Social Security system; Availability of clinical information sufficient for registry data entry and follow-up according to routine care.
Exclusion: Patients without a confirmed diagnosis of generalized pustular psoriasis (GPP) or with alternative pustular dermatoses (e.g., acute generalized exanthematous pustulosis) not meeting GPP diagnostic criteria; Absence of verifiable diagnosis in the institutional electronic health record (EDUS) or insufficient documentation to confirm GPP; Patients whose clinical records lack the minimum data required for registry variables or follow-up within routine care.