Intensive Movement and Strength Training Camp for Children With Spinal Muscular Atrophy
Tests an intensive movement and strength training camp in children with spinal muscular atrophy.
Plain-language title generated from the registry record
Registry title: HABIT-ILE + FST in Children With SMA: Preliminary Effectiveness
Key facts
- Where
- New York, United StatesSee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 5 and 17 years old?
Source: NCT07488338, who can take part
Where in United States
- Center for Cerebral Palsy Research, Teachers College, Columbia UniversityNew York, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Teachers College, Columbia University
- Trial code
- NCT07488338
- Record updated
- 22 October 2026
- Original description
This single-arm pilot study will assess the preliminary effectiveness of an intensive motor skill intervention (HABIT-ILE) combined with functional strength training (FST) in children with SMA who are receiving disease-modifying therapies. Participants will attend a HABIT-ILE + FST summer camp for 6 hours per day over a 3-week period, totaling 90 hours of training.Read full original descriptionShow less
Feasibility and Preliminary Effectiveness of HABIT-ILE + Functional Strength Training in Children With Spinal Muscular Atrophy (SMA): a Prospective Single-group Intervention Trial.
This single-arm pilot study will assess the preliminary effectiveness of an intensive motor skill intervention (HABIT-ILE) combined with functional strength training (FST) in children with SMA who are receiving disease-modifying therapies. Participants will attend a HABIT-ILE + FST summer camp for 6 hours per day over a 3-week period, totaling 90 hours of training.
Inclusion: Have a confirmed SMA diagnosis; Be 5-17 years old; Complete all pre- and post-intervention assessments; Understand and speak English; Follow instructions without major cognitive or behavioral issues; Have received a stable disease-modifying therapy (DMT) dose for ≥6 months; Be classified as a sitter or walker (SMA type 2 or 3) with supported standing ability (score ≥1 on Item 18 of the HFMSE) without KAFOs, AFOs, or external standing devices.
Exclusion: Orthopedic surgery within the past year; Concurrent participation in another clinical trial; New pharmaceutical treatment during the study.