Looks at how people with endometriosis manage their condition day to day
Documents everyday self-management experiences of people living with endometriosis in Europe.
Plain-language title generated from the registry record
Registry title: Endometriosis Self-Management Strategies
Key facts
- Where
- Wageningen, NetherlandsSee the site
AI summary: who the study is looking for
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for people living in Europe who have endometriosis, or are very likely to have it, and who can talk about how they manage it day to day.
- Age
- 16 years or older
- Sex
- Women only
- Disease stage
- Diagnosed with endometriosis, or very likely to have it based on a previous assessment, even without a surgical diagnosis.
Main reasons for not taking part
- Not living in a European country
- Not fluent in a language spoken by the research team
- Not diagnosed with endometriosis and not very likely to have it
Read by machine on 12 November 2026.
Where in Netherlands
- LeeuwenborchWageningen, NetherlandsContact: Erica SelznickTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- Wageningen University and Research
- Trial code
- NCT07591441
- Record updated
- 15 May 2026
- Original description
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?Read full original descriptionShow less
Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Inclusion: living in a European country; 16 years or older; having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis; fluent in a language spoken by the research team.
Exclusion: not meeting one of the inclusion criteria.