Looks at how people with endometriosis manage their condition day to day
Documents everyday self-management experiences of people living with endometriosis in Europe.
Plain-language title generated from the registry record
Registry title: Endometriosis Self-Management Strategies
Key facts
- Where
- Wageningen, NetherlandsSee the site
Where in Netherlands
- LeeuwenborchWageningen, NetherlandsTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Wageningen University and Research
- Trial code
- NCT07591441
- Record updated
- 15 May 2026
- Original description
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?Read full original descriptionShow less
Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Inclusion: living in a European country; 16 years or older; having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis; fluent in a language spoken by the research team.
Exclusion: not meeting one of the inclusion criteria.