Hungarian registry following patients with systemic amyloidosis
Collects information on adults with systemic amyloidosis treated across Hungary over time.
Plain-language title generated from the registry record
Registry title: Hungarian National Systemic Amyloidosis Registry
Key facts
- Where
- Balatonfüred, Budapest, Debrecen, Pécs, Szeged, and Székesfehérvár, HungarySee the 12 sites
Where in Hungary
- Balatonfüredi Állami SzívkórházBalatonfüred, HungaryTaking people
- Budapesti Péterfy Sándor utcai Kórház - RendelőintézetBudapest, HungaryTaking people
- Budapesti Szent Margit KorhazBudapest, HungaryTaking people
- Del-Budai Centrumkorhaz Szent Imre Egyetemi OktatokorhazBudapest, HungaryTaking people
- Del-pesti Centrumkorhaz - Orszagos Hematologiai es Infektologiai IntezetBudapest, HungaryTaking people
- Department of Internal Medicine and Hematology, Semmelweis UniversityBudapest, HungaryTaking people
- Eszak-Pesti Centrumkórház-HonvédkórházBudapest, HungaryTaking people
- Gottsegen National Cardiovascular CenterBudapest, HungaryTaking people
- Clinical Centre, University of DebrecenDebrecen, HungaryTaking people
- Pécsi TudományegyetemPécs, HungaryTaking people
- Szegedi TudomanyegyetemSzeged, HungaryTaking people
- Fejer Varmegyei Szent Gyorgy Egyetemi Oktato KorhazSzékesfehérvár, HungaryTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Semmelweis University
- Trial code
- NCT07689331
- Record updated
- 8 July 2026
- Original description
This registry is an observational, multicenter, retrospective and prospective, non-pharmacological study designed to collect and analyze data from patients with systemic amyloidosis treated in inpatient and outpatient cardiology, hematology, nephrology, and neurology departments across Hungary. The registry was established in 2025.Read full original descriptionShow less
Hungarian National Systemic Amyloidosis Registry (AMYREG) - A Multi-Center, Longitudinal, Observational Survey of Patients With Systemic Amyloidosis
This registry is an observational, multicenter, retrospective and prospective, non-pharmacological study designed to collect and analyze data from patients with systemic amyloidosis treated in inpatient and outpatient cardiology, hematology, nephrology, and neurology departments across Hungary. The registry was established in 2025.
Inclusion: Diagnosis of systemic amyloidosis; Patients aged ≥18 years at the time of enrollment; Signed informed consent form by the patient; Treating physician's consent; Availability of accessible medical history.
Exclusion: Lack of informed consent in the prospective study.