Building a quality of life questionnaire for children with bronchiectasis
Develops a questionnaire on daily life for children with bronchiectasis and their parents.
Key facts
- Who runs it
- Birmingham Women's and Children's NHS Foundation Trust
- Where
- United Kingdom1 site in 1 countryChoose a country to see its sites
- Trial code
- Registry title
- The Development of Paediatric Bronchiectasis Quality of Life Questionnaires for Four Demographic Groups: Children 8-12years, Young People 13 - 17 Years and Parent Proxy Versions for Ages 2-5years and 6-12years
- Status
- Enrolling by invitation
- People taking part
- 78 people, planned
- Started
- 30 Jul 2026
- Expected to end
- 30 Sept 2027
- Type of study
- Observational
- Record updated
- 6 October 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for children and young people with bronchiectasis, and parents of young children with it. They will help build a quality of life questionnaire.
- Age
- Children and young people aged 8-17 years can join themselves. Parents of children aged 2-12 years can join.
- Sex
- All sexes can join.
- Disease stage
- Bronchiectasis (widened, damaged airways in the lungs) diagnosed on a CT scan.
Main reasons for not taking part
- Children under 8 years cannot take part directly themselves.
- No written consent or assent given.
- Confirmed Cystic Fibrosis diagnosis.
- Confirmed Primary Ciliary Dyskinesia diagnosis.
The registry criteria, word for word
Show all 2 criteriaShow less
Who can take part
- Patient, child and young persons, aged 8 -17 years with bronchiectasis diagnosed on CT scan; Parent of child aged 2-12 years with bronchiectasis diagnosed on CT scan; Written informed consent/assent available
Who cannot take part
- Child under 8 years with bronchiectasis for patient direct participation; No consent/assent received; Confirmed Cystic Fibrosis or Primary Ciliary Dyskinesia diagnosis
This trial has no sites in United States.
It has sites in one country. Choose a country to see its sites.
About the trial
What the trial wants to find out
To develop and refine a disease-specific quality of life (QoL) questionnaire for children with bronchiectasis, informed by qualitative interviews with affected children, young people, and their parents.
Read full original descriptionShow less
The paediatric bronchiectasis- specific quality of life (PQOL-B) questionnaire will be developed across four demographics:
Children aged 8-12 years
Young people aged 13 -17 years
Parent-proxy for 2-5years
Parent-proxy for 6-12years
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- The Development of Paediatric Bronchiectasis Quality of Life Questionnaires
- Plain-language title
- Building a quality of life questionnaire for children with bronchiectasisGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 14 November 2026.
- Record updated
- 6 October 2026