A home-based program to help young people with epilepsy with thinking and memory
Tests the HOBSCOTCH program for thinking and memory in young people with epilepsy.
Plain-language title generated from the registry record
Registry title: HOBSCOTCH-YOUTH and Young Adults
Key facts
- Where
- Lebanon, United StatesSee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 13 and 29 years old?
Source: NCT07735715, who can take part
Where in United States
- Dartmouth HitchcockLebanon, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Dartmouth-Hitchcock Medical Center
- Trial code
- NCT07735715
- Record updated
- 2 November 2026
- Original description
The goal of this clinical trial is to learn more about the home-based epilepsy self-management program, HOBSCOTCH, for improving cognitive function (thinking and memory) and quality of life specifically in young adults, ages 18 - 29 years, who have epilepsy. It will also learn if a modification of the program for youth with epilepsy, ages 13 - 17, improves thinking and memory and quality of life and reduces stress for their parents.Read full original descriptionShow less
HOBSCOTCH-YOUTH and Young Adults
The goal of this clinical trial is to learn more about the home-based epilepsy self-management program, HOBSCOTCH, for improving cognitive function (thinking and memory) and quality of life specifically in young adults, ages 18 - 29 years, who have epilepsy. It will also learn if a modification of the program for youth with epilepsy, ages 13 - 17, improves thinking and memory and quality of life and reduces stress for their parents.
Researchers will enroll 260 young adults with epilepsy and 40 youth with epilepsy and their parent or guardian. Researchers will compare responses to questionnaires and surveys before and after participation in the HOBSCOTCH program to see if thinking, memory and quality of life have improved for young adults and youth with epilepsy and to see if parents have improved quality of life as well.
Participants will:
* Attend 9 weekly one-hour sessions of the HOBSCOTH program in their homes with a one-on-one coach using their computer or their phone; youth with epilepsy (ages 13 - 17) will attend alongside a parent or legal guardian. * Keep a short daily diary about their seizures and activity in the program using a smart phone app(lication) * Complete surveys and questionnaires before HOBSCOTCH and 3 months and 6 months later.
There are no study visits to a medical center. HOBSCOTCH is a virtual or telehealth intervention.
Inclusion: Inclusion Criteria for Young Adults with Epilepsy (YAWE) and Youth with Epilepsy (YWE):; Age 18 - 29 years for YAWE; Age 13 - 17 years for YWE; For YWE at least one parent or legal guardian provides consent and agrees to participate; Diagnosis of epilepsy (controlled or uncontrolled seizures); Subjective cognitive complaints (memory, attention, learning, problem solving, executive function, planning); Literate and proficient in English; Telephone access; Internet Access; Parent or legal guardian of a youth with epilepsy (age 13 - 17 years); Literate and proficient in English; Telephone access; Internet Access.
Exclusion: Active psychosis (any participant); Illicit substance abuse (any participant); Severe cognitive/intellectual disability (any participant); YWE cannot participate without a parent and parent's consent (or legal guardian); YWE cannot participate without assent even if a parent or legal guardian gives consent.