An online storytelling programme for people with dementia and their carers
Tests an online storytelling programme for people living with dementia and carers.
Plain-language title generated from the registry record
Registry title: Lived Experience Narratives in Dementia
Key facts
- Where
- Nottingham, United KingdomSee the 2 sites
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 99 years old?
Source: NCT07757178, who can take part
Where in United Kingdom
- Mental Health & Clinical Neurosciences, Institute of Mental HealthNottingham, United KingdomTaking people
- Nottinghamshire Healthcare NHS Foundation , Highbury HospitalNottingham, United KingdomTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Nottingham
- Trial code
- NCT07757178
- Record updated
- 11 August 2026
- Original description
The Lived Experience Narratives in Dementia (LEND) research programme involves five work packages (WP). WP1 explores how people living with dementia use narratives and how narratives can impact them. Findings will support the development of LEND theory. WP 2-3 focus on developing the digital Online LEND Intervention, assessing its usability and acceptability, and conducting a feasibility study within NHS memory assessment and community services. Activities across the first three WPs include interviews, focus groups, user-testing sessions, engagement evaluation interviews, and a two-arm randomised feasibility trial using a range of outcome measures. Findings from this stage will inform refinement of the intervention and determine the feasibility of progressing to a future randomised controlled trial (RCT) of the Online LEND Intervention. WP4 is the Online LEND Intervention two-arm RCT. WP5 involves dissemination. The protocol for WP4 and 5 have not yet been developed and rely on results from WP1-3.Read full original descriptionShow less
Improving the Quality of Life for People Living With Dementia and Carers: The Design and Development of a Dementia Specific Online Narrative-Based Intervention With a Feasibility Study
The Lived Experience Narratives in Dementia (LEND) research programme involves five work packages (WP). WP1 explores how people living with dementia use narratives and how narratives can impact them. Findings will support the development of LEND theory. WP 2-3 focus on developing the digital Online LEND Intervention, assessing its usability and acceptability, and conducting a feasibility study within NHS memory assessment and community services. Activities across the first three WPs include interviews, focus groups, user-testing sessions, engagement evaluation interviews, and a two-arm randomised feasibility trial using a range of outcome measures. Findings from this stage will inform refinement of the intervention and determine the feasibility of progressing to a future randomised controlled trial (RCT) of the Online LEND Intervention. WP4 is the Online LEND Intervention two-arm RCT. WP5 involves dissemination. The protocol for WP4 and 5 have not yet been developed and rely on results from WP1-3.
General Inclusion Criteria (apply across WP1-WP3); Adults aged 18+; Able to give informed consent and participate meaningfully in the required tasks; Adequate communication ability in the required study language; General Exclusion Criteria (apply across WP1-3); Living in a hospital or healthcare institution at the time of the study; Refusal or inability to provide informed consent, or lack of capacity to consent; Inability to comprehend participant information or communicate meaningfully.