Tracks adults with myasthenia gravis over time through a registry
Follows adults with myasthenia gravis, a muscle-weakness disorder, through regular online surveys.
Plain-language title generated from the registry record
Registry title: AXIS MG Patient Registry
Key facts
- Where
- Framingham, United StatesSee the site
Where in United States
- Alira Health - Virtual/Remote Site - Can Be Completed 100% Online - All US Residents AcceptedFramingham, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Autoimmune Neurology Alliance
- Trial code
- NCT07761026
- Record updated
- 17 August 2026
- Original description
The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time.Read full original descriptionShow less
AXIS Autoimmune Neurology Registry
The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time.
The main questions the registry aims to answer are:
* How do symptoms, daily functioning, and quality of life change over time? * What treatments do participants use, and how are these treatments related to their symptoms and health? * What challenges do participants experience with treatment, including side effects, treatment burden, missed doses, and access to care?
Participants will:
* Join the registry and complete an enrollment survey (online or through a mobile app) * Complete a brief online survey about their MG approximately once a month * Provide information that can help confirm their MG diagnosis * Optionally, share their medical records with the research team
This is an observational study. The registry will not assign treatments or ask participants to change their medical care. Information collected through the registry may help researchers better understand MG and improve future research and care.
Inclusion: Physician-confirmed diagnosis of myasthenia gravis (MG); Willing and legally able to provide consent; Lives in the United States.
Exclusion: Unwilling or unable to provide consent or comprehend and complete questionnaires; Cognitively impaired adults/unable to comprehend or understand the consent or overall study information.