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Taking people in United StatesNo phase

A Study of Patients' Preferences for Primary Immune Thrombocytopenia Treatment

Key facts

Who runs it
Novartis Pharmaceuticals
Where
East Hanover, United StatesSee the site
Trial code
Status
Recruiting
People taking part
100 people, planned
Started
8 Dec 2025
Expected to end
15 Dec 2026
Type of study
Observational
Record updated
1 October 2026

Who can take part

Age
18 years and older
Sex
Women and men
Healthy volunteers
Cannot take part

The registry criteria, word for word

Show all 5 criteriaShow less

Who can take part

  • Currently living in the US
  • Aged 18 years and older on the day of providing informed consent
  • A diagnosis of primary ITP:; For participants receiving first-line (1L) treatment for ITP: i. Diagnosed with primary ITP and started 1L corticosteroids within 3 months of diagnosis ii. Responded to 1L corticosteroid treatment [with or without intravenous immunoglobulin (IVIg)] b. For participants receiving second-line (2L) treatment for ITP: i. Assessed as needing or are taking thrombopoietin receptor agonist (TPO-RA) treatment for 2L treatment ii. Has previously been treated with a 1L corticosteroid (with or without IVIg) with insufficient response or relapse

Who cannot take part

  • For participants receiving 1L treatment for ITP only: Previous or current use of treatments different from corticosteroids and/or IVIg/anti-D immunoglobulin
  • For participants receiving 2L ITP treatment: Previous or current use of treatments different from corticosteroids, IVIg/anti-D immunoglobulin or one TPO-RA (i.e. patients who have used any treatment in a third-line setting are ineligible)

Where in United States

  • NovartisEast Hanover, United StatesContact: Novartis PharmaceuticalsTaking people

About the trial

What the trial wants to find out

This study aims to evaluate treatment preferences of patients with Primary Immune Thrombocytopenia (ITP) in the United States (US) by conducting a preference elicitation survey.

The group in the trial

  • ITP Cohort

    Adults with ITP in the US who are being treated in either 1L or 2L settings.

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

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Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Patients' Preferences for Primary Immune Thrombocytopenia Treatment
Record updated
1 October 2026