Taking people in EgyptNo phase
Registry of Children and Young People With Sickle Cell Disease in Cairo
Collects records and follows people with sickle cell disease over time, without any treatment.
Plain-language title generated from the registry record
Registry title: Hemoglobin Disorders in Egypt: Sickle Cell Disease Ain Shams University Institutional Registry
Key facts
- Where
- Cairo, EgyptSee the 2 sites
Where in Egypt
- Faculty of Medicine Ain Shams Research Institute- Clinical Research CenterCairo, EgyptTaking people
- Faculty of Medicine-Ain Shams UniversityCairo, EgyptNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Ain Shams University
- Trial code
- NCT07800247
- Record updated
- 2 September 2026
- Original description
This is a retrospective descriptive study to create an institutional registry that will continue as a prospective follow-up non-intervention study that will be carried out at Hematology Oncology and BMT Department, Children's Hospital, Ain-Shams University, Cairo, Egypt.Read full original descriptionShow less
Hemoglobin Disorders in Egypt: Sickle Cell Disease Ain Shams University Institutional Registry
This is a retrospective descriptive study to create an institutional registry that will continue as a prospective follow-up non-intervention study that will be carried out at Hematology Oncology and BMT Department, Children's Hospital, Ain-Shams University, Cairo, Egypt.
Inclusion: children, adolescents and young adults with sickle cell disease.
Exclusion: other inherited anemia.