Following people with psoriasis, eczema or hidradenitis suppurativa through monthly phone check-ins
Follows people with long-term skin conditions using a phone app and photos.
Plain-language title generated from the registry record
Registry title: Skin-in-Sight: a Longitudinal Cohort Infrastructure for Standardized Remote Monitoring and the Evaluation of Digital Care Innovations in Chronic Skin Diseases
Key facts
- Where
- Almelo, Enschede, and Hengelo, NetherlandsSee the 3 sites
Where in Netherlands
- Ziekenhuisgroep TwenteAlmelo, NetherlandsNo longer taking part
- Medisch Spectrum TwenteEnschede, NetherlandsNo longer taking part
- Ziekenhuisgroep TwenteHengelo, NetherlandsNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Medisch Spectrum Twente
- Trial code
- NCT07804134
- Record updated
- 4 September 2026
- Original description
Psoriasis, atopic dermatitis (eczema) and hidradenitis suppurativa are long-term skin conditions that flare and settle over time. Most of what happens to the skin happens at home, between hospital appointments. A dermatologist usually sees the skin only on the day of the visit, which may not reflect how the condition has been over the preceding months.Read full original descriptionShow less
Skin-in-Sight: a Longitudinal Cohort Infrastructure for Standardized Remote Monitoring and the Evaluation of Digital Care Innovations in Chronic Skin Diseases
Psoriasis, atopic dermatitis (eczema) and hidradenitis suppurativa are long-term skin conditions that flare and settle over time. Most of what happens to the skin happens at home, between hospital appointments. A dermatologist usually sees the skin only on the day of the visit, which may not reflect how the condition has been over the preceding months.
This study sets up a long-term research collection, called a cohort, in which people with one of these three conditions take part from home. Once a month, participants use a certified digital health app on their own phone to answer a short set of questions about their symptoms and about how their skin affects daily life, and to take a standard set of photographs of their skin. Twice a year they answer a longer set of questions. Taking part takes about five minutes in most months and about twenty-five minutes twice a year. The app gives step-by-step guidance on lighting, distance and framing at the start of every photo session, so that the photographs can be compared from month to month.
The photographs are reviewed by trained assessors, who score how severe the skin disease looks using the scoring systems established in dermatology research. Three assessors score each set of photographs independently, and their scores are combined according to rules that are set in advance. With the participant's permission, this information is combined with information already recorded during routine care, such as changes in treatment and hospital visits; with pharmacy records showing which medicines were dispensed; and with publicly available daily measurements of air quality, sunshine, ultraviolet radiation and pollen for the area where the participant lives.
Bringing these together makes it possible to study how these conditions change over time, what happens in the period before a flare, and how treatment and the living environment relate to the course of the disease. The collected data are also intended to support the development of computer-based tools that could in future help assess skin disease from photographs.
Taking part does not change the care a participant receives. The study does not provide medical advice, and the data collected are not used for diagnosis, treatment decisions or routine follow-up. Participants who experience worsening symptoms contact their treating physician as usual.
The cohort is also designed so that studies of digital care tools can later be carried out within it, among participants who have agreed in advance to be approached. Each of those studies is registered separately.
Inclusion: Diagnosis of a chronic inflammatory skin disease (psoriasis, atopic dermatitis, hidradenitis suppurativa), as determined by the treating dermatologist; Currently receiving dermatological care at Medisch Spectrum Twente (MST) or Ziekenhuisgroep Twente (ZGT) at the time of inclusion; Willing and able to participate in longitudinal monitoring, including completion of questionnaires and submission of standardized photographs; Sufficient command of the Dutch language to understand the study information and to complete questionnaires.
Exclusion: The patient has insufficient command of the Dutch language resulting in the insufficient ability to understand and/or answer questions.