Interactive booklet to help people with Alzheimer's disease plan future care decisions
Tests an interactive booklet for people with Alzheimer's disease and their caregivers.
Plain-language title generated from the registry record
Registry title: Choose Myself (Before) Losing Myself
Key facts
- Where
- Cleveland, United StatesSee the site
Where in United States
- The Cleveland ClinicCleveland, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- The Cleveland Clinic
- Trial code
- NCT07846566
- Record updated
- 22 October 2026
- Original description
The purpose of this study is to see if an educational interactive booklet about how dementia progresses throughout a person's life can be a helpful tool for patients to think about future decisions that might need to be made regarding their medical care and helping patients discuss their diagnosis and possible future medical decisions with their family or future caregivers.Read full original descriptionShow less
Choose Myself (Before) Losing Myself: Providing Educational Information to Empower Alzheimer's Dementia Patients and Their Caregivers Utilizing Gamification Techniques Such as Choose Your Own Adventure.
The purpose of this study is to see if an educational interactive booklet about how dementia progresses throughout a person's life can be a helpful tool for patients to think about future decisions that might need to be made regarding their medical care and helping patients discuss their diagnosis and possible future medical decisions with their family or future caregivers.
Inclusion: Participants are at least 18 years of age; Patients including those: newly diagnosed (within 30 days of informed consent discussion) and established patients diagnosed with mild cognitive impairment or clinical suspicion of mild Alzheimer's dementia diagnosis based on Montreal Cognitive Assessment score (MoCA): 14+, Mini Mental State Exam (MMSE) score: 21+ or Functional Assessment Staging Toll (FAST) score: 1-4; Able to read and respond to questions in English (workbook is not available in any other language and survey instruments are validated in English language).
Exclusion: Individuals who possess comorbid conditions that, in the opinion of the investigator, would place unnecessary additional burden upon a patient for study participation or patients for whom participation the study would not be in their best interests; Individuals who lack decisional capacity.