To Share or Not To Share: Navigating Disclosure and Stigma Among Family Caregivers of Autistic Young Adults_Group Intervention
Key facts
- Where
- Madison, United StatesSee the site
Where in United States
- University of WisconsinMadison, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Wisconsin, Madison
- Trial code
- NCT07856927
- Record updated
- 5 October 2026
- Original description
This study is a caregiver support program for family caregivers of autistic young adults (ages 18 to 26) as their family members navigate young adulthood. The program includes six 60-minute virtual sessions focused on making sense of caregiving roles during young adulthood, reflecting on everyday family experiences, supporting decision-making within families, deciding when and how to share experiences with others, and thinking about the future.Read full original descriptionShow less
This study is a caregiver support program for family caregivers of autistic young adults (ages 18 to 26) as their family members navigate young adulthood. The program includes six 60-minute virtual sessions focused on making sense of caregiving roles during young adulthood, reflecting on everyday family experiences, supporting decision-making within families, deciding when and how to share experiences with others, and thinking about the future.
Inclusion: Has a family member aged 18-26 who has received an autism-related diagnosis from a healthcare professional; Must be a primary caregiver for this family member; Must be able to speak, understand, and read English well; Participants will be able to provide consent themselves.
Exclusion: Not a primary caregiver for a family member with autism aged 18-26; Lack of proficiency in English; Individuals requiring a guardian to provide consent will be excluded.