NCT07859995Not yet recruiting
Qualitative Study With Focus Groups of People Living With ANCA-associated Vasculitis (AAV) and Clinicians, to Explore Different Perspectives on Shared Decision-making in AAV.
PACT-AAV Patients and Clinicians Together Shared Decision Making in ANCA Associated Vasculitis
Source: ClinicalTrials.gov · Last updated 6 Oct 2026
Brief summary (registry, in English)
This research aims to underpin qualitative work with people living with a diagnosis of AAV and healthcare professionals working with people living with AAV, to explore different perspectives on Shared Decision Making (SDM) in AAV. The aim is to develop key principles to consider in the future development of shared decision-making tools and interventions for use in clinical practice.
- Status (registry)
- Not yet recruiting
- Study type
- Observational
- Enrollment
- 80 (estimated)
- First submitted
- 9 Sept 2026
- Start date
- 1 Oct 2026
- Primary completion date
- 1 Jan 2027
- Lead sponsor
- University of the West of England
- Diseases
- ANCA-associated vasculitis
- NCT number
- NCT07859995
What you commit to
- Study type: Observational
- Planned participants: 80
- From 1 Oct 2026 to the primary completion date, 1 Jan 2027
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Age
- People less than 18 years of age
Other
- People who do not have ANCA-associated vasculitis
- People without capacity to give informed consent
- People who are not able to take part in the focus group in English
- People who live outside the UK or Ireland
- Members of the steering committee
- Healthcare Professionals (HCPs) focus groups:
- HCPs who do not work with people with AAV
- HCPs who work outside of the UK or Ireland
- Member of the steering committee
Who the study is looking for
- People who have a diagnosis of ANCA- associated vasculitides (AAVs)
- Aged 18 years or older.
- People should have capacity to give informed consent.
- People should have a good understanding of spoken and written English to be able to understand the participant information sheets, and consent forms.
- People who live within the UK or Ireland.
- HCPs can include doctors, specialist nurses, physiotherapists, occupational therapists, psychologists, and pharmacists.
- HCPs who work with patients with AAV.
- HCPs working in the UK or Ireland.
Criteria the registry did not label
- People living with ANCA-associated vasculitis focus groups:
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Focus groups will be held online, no facility will be used Coordinator of this site? Confirm its status | Bristol | United Kingdom | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.