Pediatric Longitudinal Glomerular Disease: a PNRC Multi-Institutional Cohort Study
Key facts
- Who runs it
- Pediatric Nephrology Research Consortium
- Where
- Boston and Cincinnati, United StatesSee the 2 sites
- Trial code
- Status
- Recruiting
- People taking part
- 1,000 people, planned
- Started
- 1 Oct 2026
- Expected to end
- Jun 2032
- Type of study
- Observational, 12 groups
- Record updated
- 12 November 2026
Who can take part
- Age
- Up to 18 years
- Sex
- Women and men
- Healthy volunteers
- Cannot take part
The registry criteria, word for word
Show all 2 criteriaShow less
Who can take part
- Children with biopsy-proven glomerular disease or populations with a clinical diagnosis of glomerular disease
Who cannot take part
- Patients who declined (or unable to provide informed consent, + informed assent of minors) to participate Patients with End Stage Kidney Disease (Stage 5 CKD, eGFR < 15mL/min/1.73m2)
Where in United States
- Boston Children's HospitalBoston, United StatesContact: Natalie PurselTaking people
- Cincinnati Children's Hospital Medical CenterCincinnati, United StatesContact: Libby Siry, CRPTaking people
About the trial
What the trial wants to find out
To review and collect information from a patients medical record in order to study and research how to help other children with glomerular diseases.
The 12 groups in the trial
- IgA Nephropathy (with biopsy)
Subjects diagnosed with IgA Nephropathy less than 18 years of age
- IgA Vasculitis (with biopsy)
Subjects diagnosed with IgA Vasculitis less than 18 years of age
- Idiopathic Immune Complex Glomerulonephritis (with biopsy)
Subjects diagnosed with Idiopathic Immune Complex Glomerulonephritis less than 18 years of age
- C3 Glomerulopathy (with biopsy)
Subjects diagnosed with C3 Glomerulopathy less than 18 years of age
- Membranous Nephropathy (with biopsy)
Subjects diagnosed with Membranous Nephropathy less than 18 years of age
- Focal and Segmental Glomerulosclerosis (with biopsy)
Subjects diagnosed with Focal and Segmental Glomerulosclerosis less than 18 years of age
- Minimal Change Disease (with biopsy)
Subjects diagnosed with Minimal Change Disease less than 18 years of age
- Anti-Neutrophilic Cytoplasmic antibody-GN (ANCA) (with biopsy)
Subjects diagnosed with Anti-Neutrophilic Cytoplasmic antibody-GN (ANCA) less than 18 years of age
- Lupus Nephritis (with biopsy)
Subjects diagnosed with Lupus Nephritis less than 18 years of age
- Alport Syndrome (with biopsy)
Subjects diagnosed with Alport Syndrome less than 18 years of age
- Infection-related or post-infectious Glomerulonephritis (with or without biopsy)
Subjects diagnosed with Infection-related or post-infectious Glomerulonephritis (with or without biopsy) less than 18 years of age
- Idiopathic Nephrotic Syndrome (with or without biopsy)
Subjects diagnosed with Idiopathic Nephrotic Syndrome (with or without biopsy) less than 18 years of age
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Record updated
- 12 November 2026