Find support, or help research
People near you who know what living with Fabry-betegség is like, and ways you can help find better treatments.
Support groups in Magyarország
- Fabry-betegekért AlapítványAlapítvány Fabry-betegséggel élőknek, Magyarország; a Nemzetközi Fabry Hálózat (FIN) tagja.All of Magyarország
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Magyarország and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Fabry-betegség.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Fabry-betegség to compare with. Family and friends can help.