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Find support, or help research
People near you who know what living with ANCA-associated vasculitis is like, and ways you can help find better treatments.
Support groups in China
- 病痛挑战基金会Illness Challenge Foundation: foundation in China supporting people with rare diseases; member of RDI.All of China
- 蔻德罕见病中心Chinese Organization for Rare Disorders (CORD): national rare disease alliance in China supporting people with rare diseases; member of RDI.All of China
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in China and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes ANCA-associated vasculitis.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without ANCA-associated vasculitis to compare with. Family and friends can help.