Find support, or help research
People near you who know what living with ANCA-associated vasculitis is like, and ways you can help find better treatments.
Support groups in United States
- Vasculitis FoundationUS-based nonprofit that supports, educates and empowers people with vasculitis, including ANCA-associated vasculitis, and funds research.All of United States
- National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes ANCA-associated vasculitis.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without ANCA-associated vasculitis to compare with. Family and friends can help.