The University of Texas MD Anderson Cancer Center
Houston, United States
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Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.
Questions for your relative's doctor
You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.
Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.
A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.
Children are often treated differently from adults, in specialist centres. Here is where to start.
Parents often receive offers of paid treatment. Please go through this list before you pay for anything.
You can share or print these pages for your members. They are free and need no account.
The trial team decides who can take part; your doctor can help you ask.
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Results, new trials and publications, newest first. Every item links to its source.
Results and new studies, newest first, in plain words.
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New and changed trials of the last 30 days, without an account and without tracking.
RSS feedCalendar reminderPublication
Chinese medical journal
PubMed · PMID 42980187Publication
Journal of pharmaceutical and biomedical analysis
PubMed · PMID 42994209Case report
Annals of hematology
PubMed · PMID 42983022Pick up to 5 questions for your situation, then print them or take them on your phone.
Choose questionsHelplines, patient groups and support services for you and your family.
Select your country to see the organisations there, starting with the ones closest to you.
Patient- and carer-led global network of CML patient groups: advocacy education, World CML Day, 'Know Your CML' app, CML Horizons conference, sharing of best practice.
Visit site: CML Advocates NetworkUmbrella of European cancer patient groups, with a patient toolbox and a legal network for cancer patients.
Visit site: European Cancer Patient Coalition (ECPC)Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
Visit site: EURORDIS – Rare Diseases EuropeNetwork of pan-European cancer patient umbrella groups (including the blood cancer networks): joint advocacy, WECAN Academy training for patient advocates, patient experience data courses.
Visit site: Workgroup of European Cancer Patient Advocacy NetworksFor anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.
Umbrella of European patient organisations and national patient coalitions.
Visit site: European Patients' Forum (EPF)Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
Visit site: International Alliance of Patients' OrganizationsFrontlight is not affiliated with these organisations; we list them because they help.
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Groups with active Chronic myeloid leukaemia work.
Houston, United States
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Toronto, Canada
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Basel, Switzerland
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Toronto, Canada
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Birmingham, United States
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Seattle, United States
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Rome, Italy
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Bordeaux, France
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Jena, Germany
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Beijing, China
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Wuhan, China
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Tianjin, China
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