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Diabetic eye disease

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Who are you looking for?

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If you are looking for a relative

Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.

Questions for your relative's doctor

How do I talk to them about this?

You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.

Support for you as a carer

Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.

Organisations on this page

Power of attorney and patient rights, by country

A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.

If you are looking for your child

Children are often treated differently from adults, in specialist centres. Here is where to start.

Before you pay

Parents often receive offers of paid treatment. Please go through this list before you pay for anything.

Open the before-you-pay list

For patient organisations

You can share or print these pages for your members. They are free and need no account.

Apply for experimental treatment or a research study

The trial team decides who can take part; your doctor can help you ask.

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See all 171 studies

Latest news

Results, new trials and publications, newest first. Every item links to its source.

Results and new studies, newest first, in plain words.

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New and changed trials of the last 30 days, without an account and without tracking.

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Tools for your next step

Questions for your doctor

Pick up to 5 questions for your situation, then print them or take them on your phone.

Choose questions

Used an AI to ask about this?

Five questions that help you check the answer.

See the five questions

Organisations that can help

Helplines, patient groups and support services for you and your family.

Select your country to see the organisations there, starting with the ones closest to you.

Umbrella organisations (they connect national groups)

  • IDF Europe

    European region of IDF: advocacy, EU research projects, youth leadership programmes and resources for people with diabetes.

    Europe

    Visit site: IDF Europe
  • International Agency for the Prevention of Blindness

    Global eye-health alliance (mixed: NGOs, professional bodies, industry, WBU); World Sight Day, Vision Atlas, advocacy; DR Barometer study on diabetic retinopathy with IDF and IFA. Not patient-led.

    International

    Visit site: International Agency for the Prevention of Blindness
  • International Diabetes Federation

    Umbrella of national diabetes associations (people with diabetes and professionals): diabetes information, World Diabetes Day, advocacy, KiDS school programme, Blue Circle Voices.

    International

    Visit site: International Diabetes Federation
  • Retina International

    Global umbrella of patient organisations for inherited and acquired retinal conditions (incl. retinitis pigmentosa, AMD); condition information, patient resources, research and advocacy.

    International

    Visit site: Retina International

General support

For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.

International

Frontlight is not affiliated with these organisations; we list them because they help.

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Find fellow researchers

Groups with active Diabetic eye disease work.

Shanghai Jiao Tong University

Shanghai, China

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Harvard University

Cambridge, United States

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Wenzhou Medical University

Wenzhou, China

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Southern Medical University

Guangzhou, China

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University College London

London, United Kingdom

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Shanghai First People's Hospital

Shanghai, China

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Capital Medical University

Beijing, China

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Massachusetts Eye and Ear Infirmary

Boston, United States

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Singapore Eye Research Institute

Singapore, Singapore

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Johns Hopkins University

Baltimore, United States

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Tianjin Medical University

Tianjin, China

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