Find support, or help research
People near you who know what living with Frontotemporal dementia is like, and ways you can help find better treatments.
Support groups in Germany
- Alzheimer Gesellschaft Baden-Württemberg e.V. Selbsthilfe DemenzDementia self-help association in Baden-Württemberg offering counselling, information and FTD-specific online support groups and seminars for relatives.Stuttgart
- Alzheimer Gesellschaft Hamburg e.V.Hamburg self-help organisation for people with dementia and their relatives, offering counselling, relative groups and courses, including FTD courses.Hamburg
- Alzheimer Gesellschaft Rheinland-Pfalz e.V.Rhineland-Palatinate dementia association offering consultations, self-help groups including an FTD group, training, an online forum and help for carers.All of Germany
- Deutsche Gesellschaft für Frontotemporale Degeneration e.V. (DGFTD)Patient association in Germany for people with frontotemporal dementia and their families; listed by AFTD (international FTD organisations list).All of Germany
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Germany and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Frontotemporal dementia.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Frontotemporal dementia to compare with. Family and friends can help.