Find support, or help research
People near you who know what living with Frontotemporal dementia is like, and ways you can help find better treatments.
Support groups in United Kingdom
- Rare Dementia SupportUK support service for people affected by rare dementias, including frontotemporal dementia: support groups, information and advice; run by UCL; listed by AFTD.All of United Kingdom
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United Kingdom and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Frontotemporal dementia.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Frontotemporal dementia to compare with. Family and friends can help.