Find support, or help research
People near you who know what living with Huntington's disease is like, and ways you can help find better treatments.
Support groups in India
- Huntington Disease Society of India (HDSI)Indian non-profit for Huntington's disease affected families, offering awareness workshops, events, coping resources, support groups and membership.All of India
- Indian Organization for Rare DiseasesIndian Organization for Rare Diseases: national rare disease alliance in India supporting people with rare diseases; member of RDI.All of India
- Organization for Rare Diseases India (ORDI)Organization for Rare Diseases India (ORDI): national rare disease alliance in India supporting people with rare diseases; member of RDI, IPA.All of India
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in India and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Huntington's disease.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Huntington's disease to compare with. Family and friends can help.