Find support, or help research

Support groups in United States

• Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
  All of United States
• HD ReachNonprofit serving families in North Carolina affected by Huntington's disease, offering connections to medical providers, education, community and a conference.
  Cary, NC
• HDSA Greater New York ChapterLocal New York chapter of HDSA offering free support groups, education days, events and a helpline for people and families affected by Huntington's disease.
  New York, NY
• HDSA Illinois ChapterIllinois chapter of the Huntington's Disease Society of America, offering support groups, a state social worker, education days and resources for affected families.
  All of United States
• HDSA Ohio Valley ChapterCincinnati-based local chapter of HDSA serving people affected by Huntington's disease with support groups, education days, newsletters and events.
  Cincinnati, OH
• HDSA San Francisco Bay Area ChapterLocal HDSA chapter in California's Bay Area serving people and families affected by Huntington's disease with support groups, education, events and advocacy.
  San Francisco, CA
• HDSA Wisconsin ChapterWisconsin chapter of HDSA serving people affected by Huntington's disease with support groups, a social worker, resources, education and events.
  All of United States
• Help 4 HD InternationalUS nonprofit for families affected by Huntington's disease, offering virtual support groups, a resource database, events, radio/TV programs and meal relief.
  All of United States
• Huntington's Disease Society of AmericaUS national voluntary health organization for families affected by Huntington's disease: support, education, care centers and research.
  All of United States
• National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
  All of United States

Contact details come from each group's own page and are checked every 3 months.

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You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.