Find support, or help research
People near you who know what living with Hypertrophic cardiomyopathy is like, and ways you can help find better treatments.
Support groups in United States
- Children's Cardiomyopathy Foundation (CCF)US charity for families of children with cardiomyopathy, offering resources, an online community, specialty-center guidance, webinars and research updates.All of United States
- Hypertrophic Cardiomyopathy AssociationUS nonprofit providing support, advocacy and education for people living with hypertrophic cardiomyopathy (HCM) and their families.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Hypertrophic cardiomyopathy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Hypertrophic cardiomyopathy to compare with. Family and friends can help.