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Myelodysplastic syndromes

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Get screened

For family members and people at higher risk: free checks can find some cancers early, before there are symptoms.

There is no routine screening for this cancer. If you have symptoms or a family history, talk to your doctor.

If several people in your family had cancer, ask your GP whether genetic counselling makes sense for you.

What do you need help with?

Where treatment stands for Myelodysplastic syndromes

Four steps, from proven to unproven.

  1. Approved in Austria

    We do not have the list of medicines approved in Austria yet. Your doctor knows what is available here.

  2. Being tested in people

    2 open trials in Austria, 323 worldwide. See the trials

    • 0 Phase 1
    • 1 Phase 2
    • 1 Phase 3
    • 0 Other studies

    Phase 1 – first tests in people, mainly for safety · Phase 2 – does it help? · Phase 3 – compared with the usual treatment.

    Trials taking new patients now. Each trial counts once; one in two phases counts as the higher one.

    • AG-120 (Phase 3)
    • AG-221 (Phase 3)
    • Asparaginase (Phase 3)
    • Asparaginase Erwinia chrysanthemi (Phase 3)

  3. Only in the lab or in animals

    Not counted yet for this disease.

  4. No proof it works

    Animal worm medicines (ivermectin, fenbendazole) for cancer: not approved, and not enough research in people to know if they help. American Cancer Society: What to Know About Ivermectin (21 May 2026) · American Cancer Society: What to Know About Fenbendazole (21 Oct 2025)

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Latest research

The five newest articles. The label comes from the PubMed index: whether it was tested in people, in animals or only in the lab.

Not labelled yet: PubMed has not indexed the article yet, so we do not guess.

All articles further down this page

Support near you

Patient groups and help in Austria.

All supportOrganisations that can help, further down this page

Cure status

Closest to patients

  1. Efficacy and Safety of Maximum Labeled Dose Luspatercept in Lower-Risk Myelodysplastic SyndromesPhase 3 trial: LuspaterceptInstitute of Hematology & Blood Diseases Hospital, China (sponsor)Phase 3Results expected 2027
  2. Ivosidenib (IVO) Monotherapy and Azacitidine (AZA) Monotherapy in Patients With Hypomethylating Agent (HMA) Naive Myelodysplastic Syndromes (MDS) With an IDH1 MutationPhase 3 trial: Ivosidenib, AzacitidineInstitut Catala d'Oncologia · Badalona, Spain + 62 more hospitalsPhase 3Results expected 2027
  3. A Multi-phase Study of ASTX030 (Azacitidine and Cedazuridine) in Myeloid Neoplasm Alone or in Combination With Venetoclax in AML (AZTOUND Study)Phase 2/3 trial: Azacitidine, ASTX030 (cedazuridine + azacitidine), CedazuridineHospital Universitario La Paz · Madrid, Spain + 73 more hospitalsPhase 2/3Results expected 2027

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If you are looking for a relative

Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.

Questions for your relative's doctor

How do I talk to them about this?

You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.

Support for you as a carer

Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.

Organisations on this page

Power of attorney and patient rights, by country

A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.

If you are looking for your child

Children are often treated differently from adults, in specialist centres. Here is where to start.

Before you pay

Parents often receive offers of paid treatment. Please go through this list before you pay for anything.

Open the before-you-pay list

For patient organisations

You can share or print these pages for your members. They are free and need no account.

Apply for experimental treatment or a research study

The trial team decides who can take part; your doctor can help you ask.

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See all 396 studies

Latest news

Results, new trials and publications, newest first. Every item links to its source.

Results and new studies, newest first, in plain words.

Plain-language summary pending. Original title shown.

New and changed trials of the last 30 days, without an account and without tracking.

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See all 903 news items

Tools for your next step

Questions for your doctor

Pick up to 5 questions for your situation, then print them or take them on your phone.

Choose questions

Used an AI to ask about this?

Five questions that help you check the answer.

See the five questions

Organisations that can help

Helplines, patient groups and support services for you and your family.

Select your country to see the organisations there, starting with the ones closest to you.

Umbrella organisations (they connect national groups)

General support

For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.

International

Frontlight is not affiliated with these organisations; we list them because they help.

Checked automatically every 90 days.

Find fellow researchers

Groups with active Myelodysplastic syndromes work.

The University of Texas MD Anderson Cancer Center

Houston, United States

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Moffitt Cancer Center

Tampa, United States

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Cleveland Clinic

Cleveland, United States

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Yale University

New Haven, United States

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Hôpital Saint-Louis

Paris, France

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Memorial Sloan Kettering Cancer Center

New York, United States

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Assistance Publique – Hôpitaux de Paris

Paris, France

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Mayo Clinic

Rochester, United States

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Université Paris Cité

Paris, France

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Dana-Farber Cancer Institute

Boston, United States

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Contact the group

Sylvester Comprehensive Cancer Center

Miami, United States

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Contact the group

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