Mayo Clinic
Rochester, United States
Team details appear once the team leader joins.
Is this your team? Claim it
Shown for Austria
What do you need help with?
- Join a trialStudies open to new patients in your country, and abroad if you want.2 open in Austria · 39 worldwide
- Offer tissue or dataGive a sample or your health data to research.
- Get supportPatient groups, money and work, help for family.3 places to get help in Austria
- Access and costGetting a treatment that is not on offer here, and who pays.
- Questions for your doctorReady lists to print or copy before your next visit.
- Don't pay for thisOffers with no proof in people, and what to check first.
Where treatment stands for Polycystic kidney disease
Four steps, from proven to unproven.
Approved in Austria
We do not have the list of medicines approved in Austria yet. Your doctor knows what is available here.
Being tested in people
2 open trials in Austria, 39 worldwide. See the trials
- 0 Phase 1
- 0 Phase 2
- 2 Phase 3
- 0 Other studies
Phase 1 – first tests in people, mainly for safety · Phase 2 – does it help? · Phase 3 – compared with the usual treatment.
Trials taking new patients now. Each trial counts once; one in two phases counts as the higher one.
- Dapagliflozin 10 mg (Phase 3)
- Hydrochlorothiazide 25 mg (Phase 3)
- Metformin XR (Phase 3)
- Tolvaptan Suspension (Phase 3)
Only in the lab or in animals
Of the 20 newest articles, 1 was in animals and 0 in the lab. See them
No proof it works
We have not checked claims for this disease yet. Check a post or a product
Latest research
The five newest articles. The label comes from the PubMed index: whether it was tested in people, in animals or only in the lab.
- In peopleLong-term longitudinal evaluation of the sele s128r polymorphism and serum E-selectin levels in autosomal dominant polycystic kidney disease.BMC Nephrol · 2026-09-11
- Not labelled yetFibrogenesis Biomarkers and Clinical Disease Progression in ADPKD.Kidney Int Rep · 2026-09-23
- Not labelled yetResponse to letter to the editor regarding "miRNA profiling of a mutation-negative PKD cohort reveals PKD1/PKD2 ADPKD shared signatures and differences".Epigenomics · 2026-11-04
- In animalsWeighted co-expression reveals early circadian and metabolic dysregulation in precystic kidneys.J Mol Med (Berl) · 2026-11-03
- Not labelled yetGiving young patients with ADPKD a voice: preliminary validation of the 'Symptom and impact scale for adolescents with autosomal dominant polycystic kidney disease' (SAIL-ADPKD).Pediatr Nephrol · 2026-11-03
Not labelled yet: PubMed has not indexed the article yet, so we do not guess.
All articles further down this pageSupport near you
Patient groups and help in Austria.
- 1450 – Rund-um-die-Uhr-GesundheitsberatungAustria's nationwide 24/7 telephone health advice line: trained staff assess symptoms and guide callers to the appropriate care.
- Telefonseelsorge Österreich – Notruf 142Free, confidential 24/7 emotional support and crisis line for anyone in Austria, reachable on 142.
- Gesundheitsportal Österreich (gesundheit.gv.at)Austria's official public health portal, offering quality-assured information on diseases, prevention, health services and patient rights.
All supportOrganisations that can help, further down this page
Cure status
- Dapagliflozin 10 mgPhase 3 · NCT07280585
- Hydrochlorothiazide 25 mgPhase 3 · NCT05373264
- Metformin XRPhase 3 · NCT04939935
- Tolvaptan SuspensionPhase 3 · NCT04782258
- Tolvaptan TabletsPhase 3 · NCT04782258
- ABBV-CLS-628Phase 2 · NCT06902558
- Atorvastatin 20 Mg Oral TabletPhase 2 · NCT05870007
- Bempedoic Acid 180 MG Oral TabletPhase 2 · NCT07282821
- EmpagliflozinPhase 2 · NCT05510115
- JMKX003142 will be administered orallyPhase 2 · NCT06800651
- LeuprorelinPhase 2 · NCT05478083
- PlcaceboPhase 2 · NCT06800651
- Sodium Bicarbonate 600 Mg Oral TabletPhase 2 · NCT05870007
- TamibarotenePhase 2 · NCT06289998
- TirzepatidePhase 2 · NCT06582875
- VX-407Phase 2 · NCT07792408 · NCT07161037
- AZD1613 - Part APhase 1 · NCT07228364
- AZD1613 - Part BPhase 1 · NCT07228364
- DRSP/EEPhase 1 · NCT07792408
- GSK4771261Phase 1 · NCT06734234
Closest to patients
- A Study to See if Tolvaptan is Safe in Infants and Children Who at Enrollment Are 28 Days to Less Than 18 Years Old With Autosomal Recessive Polycystic Kidney Disease (ARPKD)Phase 3 trial: Tolvaptan Suspension, Tolvaptan TabletsInstytut Pomnik Centrum Zdrowia Dziecka · Warsaw, Poland + 21 more hospitalsPhase 3Results expected 2028
- STOP-PKD: SGLT2-inhibition to Improve Prognosis in Polycystic Kidney DiseasePhase 3 trial: Dapagliflozin 10 mgUniversitaet Leipzig · Leipzig, Germany + 29 more hospitalsPhase 3Results expected 2030
- HYDROchlorothiazide to PROTECT Polycystic Kidney Disease Patients and Improve Their Quality of LifePhase 3 trial: Hydrochlorothiazide 25 mgUniversity Medical Center Groningen · Groningen, Netherlands + 24 more hospitalsPhase 3Results expected 2030
Choose one to continue
Larger text, shorter lines, fewer blocks, no animation.
Who are you looking for?
Your choice only changes the wording and the order on this page. It stays in this browser.
If you are looking for a relative
Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.
Questions for your relative's doctor
How do I talk to them about this?
You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.
Support for you as a carer
Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.
Power of attorney and patient rights, by country
A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.
- Hungary: patient rights representatives (Integrált Jogvédelmi Szolgálat)
- Germany: power of attorney and care directives (Federal Ministry of Justice)
- Austria: adult protection and representation (Ministry of Justice)
- United Kingdom: lasting power of attorney (GOV.UK)
- EU: your rights to healthcare in another EU country (Your Europe)
If you are looking for your child
Children are often treated differently from adults, in specialist centres. Here is where to start.
Before you pay
Parents often receive offers of paid treatment. Please go through this list before you pay for anything.
For patient organisations
You can share or print these pages for your members. They are free and need no account.
Apply for experimental treatment or a research study
The trial team decides who can take part; your doctor can help you ask.
Distance is calculated in your browser. Your city is not sent to us.
Loading trial sites…
Latest news
Results, new trials and publications, newest first. Every item links to its source.
Results and new studies, newest first, in plain words.
Plain-language summary pending. Original title shown.
New and changed trials of the last 30 days, without an account and without tracking.
RSS feedCalendar reminderPublication
Response to letter to the editor regarding "miRNA profiling of a mutation-negative PKD cohort reveals PKD1/PKD2 ADPKD shared signatures and differences".
Response to letter to the editor regarding "miRNA profiling of a mutation-negative PKD cohort reveals PKD1/PKD2 ADPKD shared signatures and differences".
Epigenomics
PubMed · PMID 42979985Publication
Weighted co-expression reveals early circadian and metabolic dysregulation in precystic kidneys.
Weighted co-expression reveals early circadian and metabolic dysregulation in precystic kidneys.
Journal of molecular medicine (Berlin, Germany)
PubMed · PMID 42975616Publication
Giving young patients with ADPKD a voice: preliminary validation of the 'Symptom and impact scale for adolescents with autosomal dominant polycystic kidney disease' (SAIL-ADPKD).
Giving young patients with ADPKD a voice: preliminary validation of the 'Symptom and impact scale for adolescents with autosomal dominant polycystic kidney disease' (SAIL-ADPKD).
Pediatric nephrology (Berlin, Germany)
PubMed · PMID 42975662Review
SGLT2 inhibitors in chronic kidney disease.
SGLT2 inhibitors in chronic kidney disease.
Postgraduate medicine
PubMed · PMID 42969253Publication
Fibrogenesis Biomarkers and Clinical Disease Progression in ADPKD.
Fibrogenesis Biomarkers and Clinical Disease Progression in ADPKD.
Kidney international reports
PubMed · PMID 42985540Publication
Long-term longitudinal evaluation of the sele s128r polymorphism and serum E-selectin levels in autosomal dominant polycystic kidney disease.
Long-term longitudinal evaluation of the sele s128r polymorphism and serum E-selectin levels in autosomal dominant polycystic kidney disease.
BMC nephrology
PubMed · PMID 42989182
Tools for your next step
Questions for your doctor
Pick up to 5 questions for your situation, then print them or take them on your phone.
Choose questionsOrganisations that can help
Helplines, patient groups and support services for you and your family.
Select your country to see the organisations there, starting with the ones closest to you.
Umbrella organisations (they connect national groups)
European Kidney Patients' Federation
Federation of national kidney patient organisations: information materials, webinars, annual summit, youth camp, EU advocacy.
Visit site: European Kidney Patients' Federation
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
Visit site: EURORDIS – Rare Diseases EuropePKD International
Geneva-based international association of national PKD patient groups (also open to clinicians/scientists): ADPKD patient route map, publications, studies, global members meeting.
Visit site: PKD International
General support
For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.
International
European Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
Visit site: European Patients' Forum (EPF)
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
Visit site: International Alliance of Patients' Organizations
Frontlight is not affiliated with these organisations; we list them because they help.
Checked automatically every 90 days.
Find fellow researchers
Groups with active Polycystic kidney disease work.
University of Kansas Medical Center
Kansas City, United States
Team details appear once the team leader joins.
Is this your team? Claim it
Mayo Clinic in Florida
Jacksonville, United States
Team details appear once the team leader joins.
Is this your team? Claim it
University of Alabama at Birmingham
Birmingham, United States
Team details appear once the team leader joins.
Is this your team? Claim it
University of Colorado Anschutz
Aurora, United States
Team details appear once the team leader joins.
Is this your team? Claim it
Tokyo Women's Medical University
Tokyo, Japan
Team details appear once the team leader joins.
Is this your team? Claim it
Yale University
New Haven, United States
Team details appear once the team leader joins.
Is this your team? Claim it
University Medical Center Groningen
Groningen, Netherlands
Team details appear once the team leader joins.
Is this your team? Claim it
Emory University
Atlanta, United States
Team details appear once the team leader joins.
Is this your team? Claim it
Inserm
Paris, France
Team details appear once the team leader joins.
Is this your team? Claim it
University Hospital Cologne
Cologne, Germany
Team details appear once the team leader joins.
Is this your team? Claim it
The University of Texas Southwestern Medical Center
Dallas, United States
Team details appear once the team leader joins.
Is this your team? Claim it