University of Tübingen
Tübingen, Germany
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Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.
Questions for your relative's doctor
You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.
Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.
A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.
Children are often treated differently from adults, in specialist centres. Here is where to start.
Parents often receive offers of paid treatment. Please go through this list before you pay for anything.
You can share or print these pages for your members. They are free and need no account.
The trial team decides who can take part; your doctor can help you ask.
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Results, new trials and publications, newest first. Every item links to its source.
Results and new studies, newest first, in plain words.
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New and changed trials of the last 30 days, without an account and without tracking.
RSS feedCalendar reminderPublication
American journal of ophthalmology
PubMed · PMID 42987996Publication
Journal of cataract and refractive surgery
PubMed · PMID 42980597Publication
Translational vision science & technology
PubMed · PMID 42986169Publication
Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists)
PubMed · PMID 42970243Publication
Genes & diseases
PubMed · PMID 42990930Pick up to 5 questions for your situation, then print them or take them on your phone.
Choose questionsHelplines, patient groups and support services for you and your family.
Select your country to see the organisations there, starting with the ones closest to you.
European umbrella of national organisations of blind and partially sighted people; advocacy on accessibility, Marrakesh Treaty, braille, mobility; news, webinars, podcasts.
Visit site: European Blind UnionAlliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
Visit site: EURORDIS – Rare Diseases EuropeGlobal umbrella of patient organisations for inherited and acquired retinal conditions (incl. retinitis pigmentosa, AMD); condition information, patient resources, research and advocacy.
Visit site: Retina InternationalGlobal umbrella of organisations of blind and partially sighted people; advocacy on accessibility, Marrakesh Treaty, braille literacy, inclusive development; scholarships and awards.
Visit site: World Blind UnionFor anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.
Umbrella of European patient organisations and national patient coalitions.
Visit site: European Patients' Forum (EPF)Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
Visit site: International Alliance of Patients' OrganizationsFrontlight is not affiliated with these organisations; we list them because they help.
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Groups with active Retinitis pigmentosa work.
Tübingen, Germany
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London, United Kingdom
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Paris, France
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Cambridge, United States
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Oxford, United Kingdom
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Nijmegen, Netherlands
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Paris, France
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Basel, Switzerland
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Beijing, China
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London, United Kingdom
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Boston, United States
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Basel, Switzerland
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