Find support, or help research
People near you who know what living with Retinitis pigmentosa is like, and ways you can help find better treatments.
Support groups in Albania
- Shoqata e Sëmundjeve të RrallaThe Rare Diseases Association Albania is an NGO organising patients and active people in the rare disease field to improve their quality of life.All of Albania
- Shoqata e të Verbërve të ShqipërisëAlbania's national association of blind people (EBU member), founded 1991 in Tirana; serves people with blindness and severe sight loss regardless of cause, including AMD, glaucoma, diabetic retinopathy and RP.All of Albania
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Albania and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Retinitis pigmentosa.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Retinitis pigmentosa to compare with. Family and friends can help.