Find support, or help research
People near you who know what living with Retinitis pigmentosa is like, and ways you can help find better treatments.
Support groups in Spain
- Asociación Mácula RetinaMácula Retina (Retina International candidate member): Spanish non-profit for patients and families with macular and retinal diseases (AMD, RP, Stargardt, diabetic retinopathy); information, advocacy, rehabilitation.All of Spain
- Organización Nacional de Ciegos Españoles (ONCE)Spanish National Organisation of the Blind (EBU member), working for the autonomy and inclusion of blind and visually impaired people via education, employment and support, regardless of cause (incl. AMD, glaucoma, DR, RP).All of Spain
- FARPE – Federación de Asociaciones de Distrofias Hereditarias de Retina de EspañaFARPE (Retina International member): Spanish federation of associations for hereditary retinal dystrophies such as retinitis pigmentosa; information, support and research promotion.All of Spain
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Spain and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Retinitis pigmentosa.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Retinitis pigmentosa to compare with. Family and friends can help.