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Find support, or help research
People near you who know what living with Retinitis pigmentosa is like, and ways you can help find better treatments.
Support groups in Sweden
- Retina Sverige (fd Svenska RP-föreningen)Retina Sweden, formerly the Swedish RP Association (Retina International member): non-profit for people with retinitis pigmentosa and related hereditary retinal diseases, with local groups.All of Sweden
- Synskadades Riksförbund (SRF)Swedish Association of the Visually Impaired (EBU member) working for the independence and participation of people with visual impairment regardless of cause, and supporting research (incl. AMD, glaucoma, DR, RP).All of Sweden
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Sweden and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Retinitis pigmentosa.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Retinitis pigmentosa to compare with. Family and friends can help.